This Telegram channel is dedicated to raising awareness and providing support for individuals with Hunter syndrome, other forms of mucopolysaccharidosis, and various rare genetic disorders in Russia. It serves as a platform for sharing information and resources related to these conditions.
МБОО "Хантер-синдром"Общество инвалидов, страдающих синдромом Хантера, другими формами мукополисахаридоза и иными редкими генетическими заболеваниями